We had an extensive appointment with Hannah's pediatrician today regarding an appointment with another doctor this weekend where he noticed Hannah's soft spot on her head seems to be already closing.
Hannah had a rough morning of blood work and test to get to the root of her problem, she seems to be just fine, and than will have these huge bursts of screaming where she seems to be in a lot of pain. Until now we thought it was related to tummy issues, and it may still be, but it also could be due to something called Craniosynostosis. It is caused when the soft spot closes too early and it causes pressure on the brain, and that could be causing her pain.
We have a CT scan with the pediatric radiologist at the Sanford children's hospital on Monday at 7:30AM. We would have it done this week but the one and only radiologist who specializes in peds is out this week on vacation.
We do take comfort in the fact that her head so far is measuring good for her size and that gives us hope that things are ok so far, and that everything might be ok! Please pray that we make it through this week without so much worry, and that the CT scan on Monday shows that her soft spot is not actually fusing together yet. If it is in fact Craniosynostosis she will have to have surgery on her head, and this is really scary to Mommy and Daddy!!!
Thank you for your prayers!!!!!
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3 comments:
Continuing to pray for Hannah's body, and for family that may be feeling stress right now - joy and peace to you! God works miracles! Love You guys!
I hope you all have a stress-free week. We'll keep you in our prayers.
Hi. I'm a friend of Theresa's. Just want to say that my son was in ICU for first month of his life and had to have a shunt placed in his head to release the pressure from his bleed. He is now 7 years old, but I know how you are feeling. Trust in Jesus 1st and in the amazing dr.'s at Sanford. Thinking of your amazing baby.
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